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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Just have to have a rant. I have been having a mild flare affecting hands and feet for a few weeks. Managed to keep on working and made it to Easter hols and thought - great - few days rest and will be able to do nice stuff with Julian and Jimmy. Have booked a couple of days in Scarborough as I love the seaside - going tomorrow. Can things just work out right for once? No chance - massive flare - hips, knees, everything  . I am so bloody angry. I can't ask for steroids or anything as I have my 2nd assessment for anti TNFs on 26 April. I wish they could have assessed me when I couldn't get down the stairs this morning. Am being angry to stop me from being upset.  Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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stupid horrid awful rotten RA!
How DARE it do this to our Julie!
cant it go away and bother some other person, like mass murderers or something???
Grrrrrrrr
(much love my friend xx)how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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It's just sod's law, isn't it? Just when you think things are going your way, along comes Arthur to bring you down again. I hope you manage to enjoy your holiday in spite of it.
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Oh Julie - what a bummer this b**** disease is. It wrecks plans, ruins holidays and so much more.
Hope you can manage to get away and enjoy the sea air.
Lots of love
Jeanxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 357
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Ohh Julie, Arthur always has a nasty habit of acting up when it's least wanted, I hope you feel better soon, and that the break does you the world of good :) Jo. 2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Oh Julie, I'm so sorry for you.
Hopefully the break away will be just what you need to stop that flare in it's tracks. I know it's an awful thing to say but it's good news in terms of your assessment though. The worse you are, the better your chances of getting approved for the anti-TNF's especially if you're under a PCT where funding is particularly short.
I do hope you have some respite from it for at least a few days so you can enjoy your trip.
x x
Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Oh Julie  to rotten RA bothering you like this when time to go away sending you big hug. lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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It's always the same isn't it Julie?
Whenever we need it to be quiet the RA rears its ugly head!
Hope you can enjoy your break in Scarborough.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Evening Julie
Sorry to hear your news, it seems so terribly unfair like you say almost too angry to get upset. I agree with Joanna thoughts and the rest away by the sea will do you the world of good.
Thinking of you.
Julia xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Julie What a pain  Hope it doesn't spoil your seaside retreat. Enjoy Scarborough (as best as you are able  ) Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hi Julie-I really do sympathise with you. I'm sure the seaside air will boost you. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Julie, so sorry about the flare hun, its just so unfair, all you want is a nice break with the family, its not much to ask. I hope you can still enjoy it, despite old arthur, love and hugs x x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi Julie i agree this disease is **** , its just not fair when you look forward to something then it rears its ugly head ! , hope you can still enjoy your self ,
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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I know the feeling Julie- had a massive flare myself which has gone on for ages.
Anyway- hope you can make it to the seaside- will do you the world of good. Have a stick of rock for me!!!!
Maria x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Thank you so much for your lovely replies - they mean so much to me as my other half,poor thing, just doesn't know what to say. Ive statred on the co-codamol 30/500s and managed to get moving a bit better this afternoon. The major problem is that both hips are really painful and burning - but I have a plan B. I had forgotten that my mum bought a mobility scooter last year but has never been confident enough to use it. It's now loaded in the back of our car for tomorrow. I can't believe it's got to this but if it means I won't get left behind - I will bite the bullett and do it. Flamingo Land tomorrow and then on to Scarborough - here we come! Julie x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 561
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Good on you Julie , i know what you mean , i hired one to go round Chester zoo before i had my knee replacement never would i have thought i would get on one but i was so happy i could get around and my son Jonny absolutely loved getting a ride around  , in the end my mum and sister were asking for a go as i was speeding round ! Enjoy your trip , Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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The Scooter sounds like a great idea, really hope you enjoy the trip.
Best wishes
Sheila
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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To scooter means you can go away and enjoy it,hope extra strong pain relief does trick for you and sea side is so refreshing. enjoy lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Aw, Julie I am so proud of you! It is very hard to do what you are doing but it will be worth it. Keep taking ALL the pain relief you need and enjoy yourself.
I had to resort to my (blue) crutches when Marie was in the big play and then when the relics came and it was very painful but worth every moment of difficulty.
Hope SO much you have a wonderful time!
Big prayers,
Amanda
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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i think that is a fab idea- I have a push along chair in the boot now, needing it far more than I would like really but I need it.
I am going to look for a car that can manage my power chair for my next mobility car so I can go places with the children more.
Jenni xx
PS Is the pain any better this morning?how to be a velvet bulldoser
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